Rare As One (Cycle 3)

About this funding opportunity

This RFA closed on February 22, 2024

SCIENCE GRANT RESOURCES PAGE Rare As One (Cycle 3)

The Chan Zuckerberg Initiative invites applications for five-year projects from patient-led rare disease advocacy organizations to join the Rare As One Network. Grantee organizations will accelerate research within individual disease areas and work across specified areas of scientific focus (channelopathies; ciliopathies; or inborn errors of metabolism) to develop shared research priorities and proposals. Learn about our Cycle 3 grantees"). Learn about our Cycle 2 grantees"), view the RFA"), and read our Medium post. Learn about our Cycle 1 grantees"), view the RFA"), and read our Medium post").

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For administrative and programmatic inquiries, or other questions pertaining to this RFA, please contact sciencegrants@chanzuckerberg.com. Key Dates

November 30, 2023

Application portal opens

February 22, 2024

Applications due by 5 p.m. Pacific Time

Early August 2024

Earliest notification of decisions (subject to change)

October 1, 2024

Earliest start date (subject to change)

Award period and start date: Awards will be five years in duration with a project start date of no earlier than October 1, 2024. Actual start date may vary.

Important Resources:

Application Instructions")

Grant Writing Introduction Opportunity

Overview

At the Chan Zuckerberg Initiative (CZI), we believe in supporting and leveraging the power of patients to accelerate research and drive progress against rare diseases. That’s why, with continued guidance from patient communities, rare disease experts, and advocacy organizations, we are continuing to lift up the work of patient communities. Through the Rare As One Project"), we will scale a model in which patients, researchers, clinicians, and others work together to advance progress against their diseases.

Through the Rare As One Network (Cycle 3) Request for Applications (RFA), CZI seeks to create a cohort of patient-led rare disease advocacy organizations that are dedicated to accelerating research across three classes of disease: channelopathies, ciliopathies, and inborn errors of metabolism (IEMs). CZI is inviting patient-led rare disease advocacy organizations focused on diseases within these three scientific focus areas to apply for a five-year grant opportunity to join the Rare As One Network. CZI will provide awardees with support to accelerate research within their individual disease areas and to work across their area of scientific focus (channelopathies; ciliopathies; or inborn errors of metabolism) to develop shared research priorities and proposals.

CZI will provide support for up to 30 patient-led organizations to strengthen organizational and scientific capacities; assemble or strengthen a collaborative research network, including basic researchers focused on the area of scientific focus; convene their disease community; and develop a patient-prioritized research agenda within the disease area. Throughout the grant period, CZI will provide grantee organizations with capacity building support, including funding, training, community learning opportunities, and mentorship. In turn, we ask the organizations to participate as active members of the Cycle 3 cohort and overall Rare As One Network. This includes participation in regular calls, convenings, and collaborating with the other organizations within their area of scientific focus to identify shared research priorities and to develop research proposal(s) that could be eligible for funding under a possible supplemental CZI grant program. Eligibility Applicant organizations must: Be patient-led advocacy groups, disease foundations or organizations that represent patients, employ patients in key leadership roles (e.g., Founder, Executive Director, Board of Directors), are patient-centered in their programming, and are representative and inclusive of the community they serve. Be dedicated…

Topic areas: Life Sciences and Health, General and Cross-cutting R&D.

Funding amount

This grant provides Varies in funding.

Deadline

Applications are accepted on a rolling basis; there is no single fixed deadline.

Who can apply

This opportunity is open to the following applicant types:

• Not specified by the program.

Eligibility

The program did not publish a separate eligibility statement. See the official opportunity page for the full eligibility criteria.

Agency

Rare As One (Cycle 3) is administered by Chan Zuckerberg Initiative (CZI), listed via Chan Zuckerberg Initiative.